Three year old Charlie Tandberg was born with a very rare chromosomal disorder called 15q15.2q21.3 Deletion Syndrome. Very little is known about his condition as he is the only person in the world recorded with it.
Charlie is severely intellectual and physically disabled has low muscle tone, cannot sit and has trouble holding his head up. His gross and fine motor skills are delayed, his vision is poor and he suffers from random seizures.
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To assist Charlie’s family with the purchase of a modified vehicle, members of the Red Knights Motorcycle Club Australia 5 and Australia 6, in conjunction with the Warragul Fire Brigade, will be holding a fund raising ride Charlie’s Ride to The Warragul Fire Station on 23 November 2013.
As well as the ride there will be a barbecue, raffle, auction, face painting, Captain Koala and an ice cream truck.
There will be several locations to join the ride, including:
SALE – Port of Sale carpark, Canal Rd, (behind the Shire offices) at 10:00am,
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NARRE WARREN – Shell Service Station, Laurderdale Rd at 10:20am,
NEWBOROUGH – BP Service station Narracan Drive about 11:00am,
DARNUM – General Store,Main Street at Midday, and
WARRAGUL – Fire station at 12:30pm.
The $5 ride fee can be paid on the day.
Additional donations can be made by direct deposit to:
Account name: Red Knights MC AUS 6
BSB: 633000
Account:: 143146975
Reference: CHARLIE
More about Charlie
https://www.facebook.com/Charlies.Journey
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More about Red Knights Motorcycle Club
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Facebook event page
https://www.facebook.com/events/486149984784497
Contacts
Andrew Young, australia6@redknightsmc.com
Ross Cohen, rosscohen@nwfb.org.au
